Florida Hospital Association

End of Life Toolkit

Tool/Resource Category	Tool/Resource
General End of Life Issues	Education for Physicians on End-of-Life Care (EPEC )(www.epec.net) End-of-Life Physician Education Resource Center (EPERC) (www.eperc.mcw.edu) End-of-Life Nursing Education Consortium (ELNEC) (www.aacn.nche.edu/elnec) Toolkit for Nursing Excellence at End of Life Transition for Nurse Educators (www.son.washington.edu/departments/bnhs/pain/index.html) Project GRACE (Guidelines for Resuscitation and Care at End-of-Life) (www.p-grace.org) Project on Death in America (www.soros.org/death) Last Acts (www.lastacts.org) Americans for Better Care of the Dying (www.abcd-caring.com) Growth House: Guide to Death, Dying, Grief, Bereavement and End-of-Life Resources (www.growthhouse.org) Innovations in End-of-Life Care (www.edc.org/lastacts) On Our Own Terms: Moyers on Dying (www.thirteen.org/onourownterms) AHA Circle of Life Award (www.aha.org/circleoflife) Dying Well (www.dyingwell.org) Partnership for Caring: America's Voices for the Dying (www.partnershipforcaring.org) Promoting Excellence in End-of-Life Care (www.promotingexcellence.org) The RAND Center to Improve Care of the Dying (www.rand.org/health/dying.html) Supportive Care of the Dying (www.careofdying.org) Toolkit of Instruments to Measure Care at the End-of-Life (www.chcr.brown.edu/pcoc/toolkit.htm) Principles for Care of Patients at the End-of-Life (www.milbank.org/endoflife/index.html) End-of-Life Care and Hospital Legal Counsel (www.milbank.org/end.html) Dartmouth Atlas (End-of-Life Care section. Order from AHA www.aha.org) Improving Care at the End of Life (self study packet and test that meet Florida education requirement option. Order at www.fha.org/publications/nursingreports.html) MediCaring (www.medicaring.org) IHI End-of-Life Resources (www.ihi.org/resources/eol/overview.asp) Missoula-vitas Quality of Life Index (MVQOLI)(www.dyingwell.com/MVQOLI.htm) Booklet on "Caring Conversations" (www.midbio.org/workbook.pdf) Hospice of the Florida Suncoast (www.thehospice.org) Meeting the Challenge: Twelve Recommendations for Improving End-of-Life Care in Managed Care, contact the Center for Applied Ethics and Professional Practices, Education Development Center, Inc. at 617-969-7100 ext 3388 or spiszcz@edc.org On Line Journal (www2.edc.org/lastacts/) Cultural Issues and End-of-Life Care (www.apa.org/pi/eol/homepage.html) Helping Employees with EOL issues (www.lastacts.org/files/publications/order%20form.pdf) Bibliography for Critical Care EOL (www.promotingexcellence.org/navigate/critical_care_bib.html)
Palliative Care	Center to Advance Palliative Care (CAPC) (www.capcmssm.org) Pioneer Programs in Palliative Care: Nine Case Studies (www.milbank.org/pppc/0011pppc.html) Precepts of Palliative Care (www.lastacts.org) Institutionalizing Palliative Care (www.edc.org/lastacts/) Improving Palliative Care for Cancer (www.nap.edu/catalog/10147.html) Children and Palliative Care (www.nap.edu/catalog/10147.html) National Hospice and Palliative Care Organization (www.nhpco.org) American Hospice Foundation (www.americanhospice.org) Hospice Foundation of America (www.hospicefoundation.org) Presentation: Restoring the Balance: Introduction to Palliative Care and Hospice(www.capcmssm.org/content/71/index.html?topic=6) Canadian Standards of Hospice Palliative Nursing Care (www.cpca.net/sigs/standards.pdf) City of Hope Palliative Care Resource Center (http://sccpi.coh.org) Hospice Association of America (www.hospice-america.org) Hospice and Palliative Nurses Association (www.hpna.org) The Edmonton Palliative Care Program (www.palliative.org) Doyle, D., Hanks, G., & MacDonald (1999). Oxford Textbook of Palliative Medicine (2nd Ed.). New York: Oxford University Press. Ferrell, B. R., & Cassel, C. K. (2001). Textbook of Palliative Nursing. New York: Oxford University Press. Portenoy, R. K., & Bruera E., (Eds.). (1998). Topics in Palliative Care (Vol 3). New York: Oxford University Press. Twycross R. (1999). Introducing Palliative Care (3rd Ed.). Oxford, UK: Radcliffe Medical Press. Medical College of Wisconsin Palliative Care Programs (http://mcw.edu/pallmed/)
Advance Directives	Patient Self Determination Act Florida Statute (F.S. 765) Five Wishes (www.agingwithdignity.org) Ethical Wills (www.ethicalwill.com/)
Partnership	Florida Partnership to Improve End-of-Life Care
Patient & Family	Family Compendium: Caregiver Resource Guide (www.lastacts.org/files/publications/familyresources.pdf) National Family Caregivers Association (www.nfcacares.org) National Alliance for Caregiving (www.caregiving.org) Caregiver (www.caregiver.com) Caregiving (www.caregiving.com) Caregiver Survival Resources (www.caregiver911.com) Caregiver tips (www.caregivertips.com) Support Officer (www.supportofficer.com) Association for Death Education and Counseling (www.adec.org) Primer on Critical Care for Patients and Families (http://thoracic.org/assemblies/cc/ccprimer/mainframe2.html) Grief Guides (www.nhpco.org/public/articles/indes.cfm?cat=106) Consumer's Guide to Selecting a Hospice (www.hospiceinfo.org/public/articles/program-blued1.pdf) Choices in Dying (www.choices.org) Empowering Caregivers ( www.care-givers.com/pages/main.html#Anchor) Loss and Grieving Series (brochures) www.lastacts.org/ Finding Our Way: Living with Dying in America (Online Course) www.scu.edu/fow/
Bioethics	Florida Bioethics Network (www.med.ufl.edu/chfm/ethics/fbn/) Midwest Bioethics Center (www.midbio.org) Ethical Wills (www.ethicalwill.com)
Pain Management	AHRQ Pain Management Guidelines (www.ahcpr.gov/) American Academy of Hospcie and Palliative medicine (www.aahpm.org) American Academy of Pain Medicine (www.painmed.org) American Alliance of Cancer Pain Initiatives (aacpi.org) American Association of Cancer Online Resources Inc. (www.medinfo.org) American Board of Internal Medicine- Care for the Dying Physician's Narratives (www.abim.org/pubs/narr001.htm) American Cancer Society (www.cancer.org) American Pain Foundation (www.painfoundation.org) American Pain Society (www.ampainsoc.org) Association of Pediatric Oncology Nurses (www.apon.org) Cancer Library (www.medhip.usa.net.cancer.htm) International Association for the Study of Pain (www.halcyon.com/isap/) Mayday Pain Project (www.painandhealth.org) National Cancer Institute (www.nci.nih.gov) Oncolinks Pain Page (oncolink.upenn.edu/specialty/pain) Oncology Nursing Society (www.ons.org) Shaare Zedek Cancer Pain & Palliative Care Reference Database (cherny.roxane.com) Resource Center of the American Alliance of Cancer Pain Initiatives (www.wisc.edu.edu/trc/stcont/stcont.htm) The Roxanne Pain Institute (www.roxane.com/pain/library/Newsletters/MDA) Wisconsin Pain Institute (www.wisc.edu/wcpi) McCaffery, M., & Pasero, C. (1999). Pain: Clinical Manual (2nd Ed.). St. Louis: Mosby.